So now that we are back and the trip went great, there were a few moments not so great. Drake had 4 fainting spells. Luckily, I am starting not to panic or feel the need to rush to call all doctors and get to the hospital. I'm not sure if this is a good thing or not, but it helped get through the weekend with out spending it in the ER.
We already had an appointment with the neurologist on the Tuesday following our trip(Thank-you GOD!!!). Even though she's not my favorite person, I went in with a steady heart and mind, and decided to try get this thing figured out. At least get started. She is ordering a test which we will have to stay at the hospital for 3-5 days minimum. Trying to catch one of these "episodes". Seems there is more concern now that they are happening more often. He had 2 more the week before we left for our trip + the 4 in Atalanta, puts the docs a little more on their toes. There is also another test ordered which will be 24 hrs in the hospital to check for sleep apnea and reflux again. She's somewhat concerned about him having these episodes at night when we might not know they are happening.
Dr.Harper seems to think that these fainting spells might be more related breathing/apnea rather than neuro. Let's hope so, even though I don't particularly take a liken to her, I am pleased with her promptness to help figure this out. We will see what the results are and her follow-up skills with this problem.
We already had an appointment with a Dr. Wooten @ Raleigh Neurology Associates in May. I'm keeping this and going for more or less a second opinion and to see if I need to change Drake to another office. I'm not to fond of the thought of driving to Raleigh, but I hear stories of families traveling much further to see who they feel is best for their children's care. I'm hoping we can get these testes done before we go to Raleigh so that can be behind us and move forward instead of living in this limbo again.
We already had an appointment with the neurologist on the Tuesday following our trip(Thank-you GOD!!!). Even though she's not my favorite person, I went in with a steady heart and mind, and decided to try get this thing figured out. At least get started. She is ordering a test which we will have to stay at the hospital for 3-5 days minimum. Trying to catch one of these "episodes". Seems there is more concern now that they are happening more often. He had 2 more the week before we left for our trip + the 4 in Atalanta, puts the docs a little more on their toes. There is also another test ordered which will be 24 hrs in the hospital to check for sleep apnea and reflux again. She's somewhat concerned about him having these episodes at night when we might not know they are happening.
Dr.Harper seems to think that these fainting spells might be more related breathing/apnea rather than neuro. Let's hope so, even though I don't particularly take a liken to her, I am pleased with her promptness to help figure this out. We will see what the results are and her follow-up skills with this problem.
We already had an appointment with a Dr. Wooten @ Raleigh Neurology Associates in May. I'm keeping this and going for more or less a second opinion and to see if I need to change Drake to another office. I'm not to fond of the thought of driving to Raleigh, but I hear stories of families traveling much further to see who they feel is best for their children's care. I'm hoping we can get these testes done before we go to Raleigh so that can be behind us and move forward instead of living in this limbo again.
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