How do I catch up on 3 months gone by? I guess I don't! It seems after we sit here in the hospital waiting for Santa to arrive, the past 3 months are gone by and still here we are. Drake has been sick and not had a full meal in a week. He finally got too dehydrated yesterday and here we are for the BIG day tomorrow. They started IV fluids and he is responding well!!! Mommy had to go home last night to finish wrapping and make sure all was ready for Santa to come. Grant (big brother-6) was assured that Santa will make it to the hospital, so we're having a pajama party tonight in our Christmas pj's and will await the arrival of Jolly Old St. Nick.
After sitting here for the last couple hours, I thought it would be a good time to catch up on the blog! So here is the QUICK version;Summer was pretty uneventful! The Drake Naylor Invitational was a BIG success, $62,000!!!!!!! (More to come later with a video) Actually very few doctor appointments, but also little help with his "episodes".
After starting back to school, Drake ended up in the hospital due to an accident at school. His feeding tube was pulled out and had to stay at Brenner's for 4 days. I was told it was going to happen one day, I'm just glad it wasn't me! Unfortunately we couldn't get the tube re-inserted in time (only 20 minutes time lapse) and it lead to a the unfortunate event of the hospital trip.
He now loves school and his new teachers (Ann, Betty & Donna). I was so worried when we had to move into "pre-school" and that it would take forever to "break in" a new teacher and therapists!!! But once again, Gateway Education Ctr. has come through and we couldn't be happier!!! Drake's new teacher not only has over 20 years experience, she also use to work at the school for the deaf AND has a special needs child of her own!!! Ann and all the therapists work well together and I love their since of communication with each other and with us! I for see a long and loving relationship building as I write!!!
Later while seizures continued to get worse, we came back to Baptist Hospital for the EMU (epilepsy monitoring unit). He performed well and had several seizures while being "hooked-up"! We started on one medicine which didn't work (shocker!!!) We have since stared another and still battling the communication issues with our neurologist when things don't seem to be going well.(our on going battle)
We lost one of our GREAT nurses for Drake in September. S- had to go back to school, she's trying for her P.A. degree and we wish her the BEST!!! We have since started a new girl P- who is leaving at the end of December to go to Forsyth Tech to finish her nursing degree. We will miss her dearly, but will keep touch!!! It seems the 3 greats( Princess, Shafaq, & Pierina) we have had, all have an enormous since of ambition. We always want you girls to stay, but know you are here for bigger reasons than just to help our son. Thanks for all you girls do and we don't want any of you to lose your special talents!!! You each deserve the best!
I truly am disappointed in myself for not keeping up with this blog! I always have so much going on every week that I want to share. As I sit here, in the hospital on Christmas Eve, it all seems irrelevant. I have lost more sleep about Drake's seizures and the frustration with the neurologist. I have worried my self to death about Grant's feelings of being left out and his BIG adventures of beginning Kindergarten! He's the best big brother and I can tell God has big plans for his future!
Tomorrow Santa will come, then Santa will be gone, but we still have our family! What a lucky life I have; to share with each other and with you! Thanks for evryone's support this year and I'll try to keep you posted better, again :)
MERRY CHRISTMAS TO ALL AND TO ALL A GOOD NIGHT!!!
