Monday, September 22, 2008

When what to my wondering eyes did appear?

About two weeks later, he had the big one. I’m sorry it had to happen to Ms. Lori, but I was glad that someone other than me and Shane had a chance to see him go out. At my usual 2:00, I walked in the school only to find Drake not in the class room, not anything too unusual. I asked where he was and the assistant said he was at the nurse’s office with Lori. When she said it wasn’t a weight check, I thought I’d better hurry up front. Grant and I walked in to find Drake limp and not responsive. His oxygen levels had dropped to the low 70’s. (I was told he had only been in there for a couple minutes) Connie the nurse said typically babies are blue at this point and suggest I call the pediatrician. Taylor Swink cleverly took Grant with her to the classroom. Yes, at this point I was getting ready for panic, trying not to cry, I knew I might never recover. How do you react to the sight of your child lying practically lifeless for almost 20 minutes by the time we got in the car? Lori (Drake’s teacher) suggested letting her take Grant to Grandma Carole’s so he wouldn’t have to go to the ER with us. Thank-You Lori!!!
Dr. Y said I needed to get him to the ER immediately; he would call ahead and meet us there. Of course Cone was the closest (5 min.) and I went straight there. As I stood in the line to check in for what seemed like an eternity, a nurse came up to me and asked what I was there for. I said,” My child has been unconscious for 30 minutes.” I had no idea how quickly people could move and we headed for the back. They immediately started an IV and he didn’t even flinch! Taylor showed up a little bit later. I was glad to see her; the ER is not a great place to sit alone with your unconscious child. She was nice enough to move my car away from the front door and turn off my hazard lights. Shane showed up a little while after that. Only to find out after x-rays, blood work and two hours, they didn’t know what to do….. I did!!! “Stop what you are doing and take me to Brenner’s Children’s Hospital!!!” By then Dr. Y arrived, called Dr. H and then we waited for the transport unit to show. No one could argue, no one knew what else to do.
When what to my wondering eyes did appear? But a boy with bright eyes and a grin from ear to ear.
Yes, Drake came out of his, whatever it was. They decided to transport anyway and run more tests at Brenner’s. Did they find anything? NO!!! Oh yea, I was still in my bathing suit from earlier in the day when I thought I was just going to pick-up Drake from school. I think we left the hospital around 9:00p.m. (Note to self; always keep a change of clothes in car for both Mommy and kids!)

Friday, September 12, 2008

EMU



As I sit here in line to pick up my 6 year old for kindergarten, it occurs to me what an ideal time to catch up on Drake’s blog. Seems the summer took more of our time doing nothing than I realized. After several requests for an update, I’m back and ready to share more of Drake’s story.
I’ll try and give a quick catch up from where I left off. After more episodes, Dr. H set us up in the Epilepsy Monitoring Unit. It seems Drake doesn’t like his head scrubbed with sandy like abrasives to help the EEG leads connected to his head. It took approximately 45 minutes for the nurse to scrub and stick and 45 minutes of crying (Drake that is.), his head was bandaged up so the wires would hold for the duration. We were told that the stay could run about a week at the most and we’d have to wait and see if they could possibly catch one of his episodes. (The passing out, oxygen dropping, etc.)
I have to say the room is about half the size of an ordinary hospital room. The stay was uneventful until the 3rd night when Drake was so upset about bedtime. He was in the middle of a screaming fit, when out he went. Shane and I looked at each other and couldn’t quite tell if he finally went to sleep or he was having an episode. There is a button to push which is connected to his wires to try and give the doctors a pin point in time to go back and review. Guess what it showed? NOTHING! So after 4 days they let us go home with “possible breath holding spells”. I’m not even going to give all the reasons why that was not possible, but after seeing the ENT and another Neurologist, they agreed with me. (Oh yea and the stay cost a whopping $27,000 for 4 days, crazy!)
Oh yea, and it took them 3 days to get his meds brought in at the right dose and time. Thank-you God for leaving me half a brain from my teenage years so I can keep up with my children. I think he only allows us that much as adults or we would still know everything and never have children.