Since last March we have been very fortunate with the entire seizure fiasco. With the uncontrolled, unknown causes & multiple types of seizures, we were able to have some peace with medications. I decided NOT to post about the conversations with the Neurologist about implants, brain surgery, Drake's future and more. It was too many days and nights of crying to ordeal putting into words. Putting it here on Drake's blog seemed cruel and unusual punishment at the time (to myself). Looking back, I wish I was able to capture that moment so I could refer back and see how far (once again) Drake has come.
The cocktails of medications the doctors put together have been mixed & remixed several time. They will forever be changing (as this monster does), but we are happy all the same for the past year being so smooth. I'm not saying we don't still fight that demon called seizure every day, but I am saying we have built a small wall to keep him at bay.
That little devil still sneaks in every week. He stays longer some days than others. He acts and looks different each time, he's become a chameleon of the demon world. I read about others who fight this battle each and everyday as well. I have cried for other mother's and their children who are in the deepest part of their journey trying to rise above to win. I have seen this demon win and steal their spirits and love for life. I have seen this demon loose, but not as often as I would like.
So as for today, we are grateful. "Bring It" you UGLY demonic monster! You may steal our fears, but you will NOT steal the love for our child!
4 comments:
Love you guys. You rock.
Awesome Post Sister - Love you!
And we will continue to win until the demon runs gets tired and runs away. Love you.
May God bless your sweet son and grant you strength & peace. Keeping you close in prayer~
Christie
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