"STILL"

Drake Naylor's Episode


Drake Head Drops Scene 2
We are "still" in limbo with the seizure/ head-drop/ narcoleptic episodes. Since I "still" don't know what to call them, episodes "still" continue to be the word of the month (rather year). After going to Chapel Hill Children's Hospital for a 3rd opinion a month ago, we are "still" waiting. I was happy when I left there, Dr.T said he wanted to show the episode videos, records from Brenner's and details from the EMU (epilepsy monitoring unit) to his group of colleges. Sounds great in theory!!! I "still" haven't heard. E-mails have been sent and phone messages left to see where he is on an opinion. I'm "still" here watching Drake episode away!!!
There does seem to be a pattern starting to emerge. He'll have 4-7 days with no problems, then 4-7 days in a row of episodes. Last Friday one of the old type showed it's ugly face. He was passed out for 7 minutes and his oxygen dropped in the mid to low 80's. Oxygen was administered. He hasn't had one of those since early fall. The longest one lasting 4 hours (last year), but NOT typical. That word, typical, seems almost like an oxymoron :)