Funny how I look back on this blog and read what I have done. It seems I get so caught up in my life now, that these days of "Baby Drake" seem so far away! It's nice to be in a different place, but it's important to try and finish (from what I can recall) of these days!
I have learned alot about blogging and will try and do better about inserting links.
with that said I will get to the next story that was a definite moment in our lives. I went to take Drake to see the G.I. doc at Brenner Children's Hospital. I remember it was a 4:00 appointment. I remember worrying about the how bad the traffics would be between Winston Salem and home. I remember sitting in the office with the doctor saying, "I hope you don't mind if I feed him while we talk".
Drake, at the time, was still on a special feeding bottle called a Haberman Feeder. He latched on as usual, with the rubbing of his cheeks, to get him stimulated enough to suck. After several minutes of the same ole conversations about little weight gain and "failure to thrive", Drake began to cough. Nothing unusual for us. It generally led into some sort of sputtering and sometime crying. I always figured his feelings were hurt that he couldn't get enough to eat and was too fed up to try again.
Dr.H asked if he did that often. My answer was of course, yes! He sent us over to take a feeding swallow test, which he had had before. The same two nurse/therapists were there. I remember talking about the latest in Scrap booking and Vera Bradley purses. It didn't take a genius to see the change of their expressions when the conversation came to a quick halt. It was nice of them to just stare at the screen and each other while trying not to say much to me. I was by myself, funny how you tell yourself "It's no big deal, what really could it be?"
I went back to the waiting room and the two girls came out to tell me I needed to wait and see the doctor and not to leave without seeing him first. I don't recall how long I sat there, but I hesitated to call Shane. Still thinking, "It's no big deal." After that it became a blur. Dr.H said something about aspirations and feeding tubes!?!?!
Dr.H said he was going to go call the surgeon to come talk with me. At that point, I realized "Now it's a BIG deal!" Time to call Shane, time to call the feeding specialist, time to call the teacher. All of who didn't think he would need such, including myself!!! They all asked the same question, "Why, for what reason?" This is the question I have asked myself since the day I found out about Drake's chromosome abnormality. I started crying. It seemed at this point I couldn't hold it together. There was barley a sole on the entire floor of the hospital. I was the only only one in the waiting room.
The reason Drake was in quick need of the G-Tube, he was aspirating his formula and the doctors were concerned of Drake getting phenomena. No one could argue with that medical reason. Seems we had a time bomb of problems ahead if we didn't take care of this a.s.a.p.
Shane walked in the same time the surgeon did. I remember Dr.P, tall still in his scrubs wearing neon orange Crocks. Both doctors and the two of us sat in the gigantic waiting room, like it was our living room. He was very mild in describing exactly what Drake was needing. I'm sure I was the umpteenth, hysterical parent he had talked to that day. He never hesitated when I asked, "what if I need some time to think about this?" His answer was, "You can have till Monday". Oh yea,did I mention, it was already Thursday?
Needless to say we scheduled the surgery and went home. All this because of a little cough in the doctors office. God's intervention? I think so!!!
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